Thank you for visiting my Moving Day page. I was diagnosed with Young Onset Parkinson’s Disease (YOPD) in late October 2012. At the time I was 31, about half the age of most Parkinson’s patients. While less common (YOPD effects 10% of all PD patients), Parkinson’s can effect young people, as I’ve found out first hand. YOPD typically progresses slower than PD in an older patient, but it also presents different challenges as somebody with YOPD still has to juggle a job, family, etc. along with the disease.
Parkinson’s is a progressive neurological disorder resulting from the loss of dopamine-generating cells. While it affects people in many different ways, common symptoms include shaking, rigidity, and slowness of movement. For me, rigidity and slowness are the primary symptoms, with an occasional tremor. The hardest part is that my hands and arms don’t always move the way I want them too. My current drug regiment is 15 doses a day, which is pretty typical for people with PD. Without insurance my medications would cost $20,000 annually, which is a considerable amount of money.
My life has changed a lot since I was diagnosed. I am now married with three kids under the age of 4. The last year has been wild, with me changing jobs, moving into a new house, and the birth of our third child Corrine in April. I am incredibly fortunate that my Parkinson’s is not yet very advanced, and I hope it remains that way for a long time. That being said, it is something that is always in our life, and clouds the future. Our primary motivation for moving was that a single-story home became available down the street from where we used to live. It’s a place we can grow old in and have less worries about me falling on the stairs, or just being able to access the whole house.
While my Parkinson’s is not very aggressive at this point, it is always present, and will be until we find a cure. That is why I encourage you to consider making a donation. Over the past six years Todd’s team has grown in size and raised over $60,000. The challenges of Parkinson’s still exist and as of yet there is no cure, but I am hopeful that with your donation more people will get the support and resources they need now, and one day soon we will put an end to this disease.
Thank you for your support,