lMessage from Captain John

Welcome to the Take Big Steps team page! Did you know that  50,000-60,000 new cases of Parkinson’s disease (PD) are diagnosed each year in the US alone. Add that to the one million people who currently have PD, and you end up with a lot of people who need your support. With the aging population these numbers will increase.   Your support will help us continue improving the quality of care for those living with Parkinsons’s disease.

To become a member of our team please select the  Team button at the top or bottom of the page. To donate or visit a team members personal page please select from the Team Members  at the bottom of the page.  Thank you for supporting us and the  work of the Parkinson’s Foundation.

Some questions you may want  to ask captain john.

Why is the team named Take Big Steps?  With Parkinson’s simple things like walking no longer come naturally. You have to think about it,  Narrow spaces are difficult to navigate.  Sometimes I just freeze when going through a doorway. Sometimes when I tell myself to take big steps I can  start moving. Some times it doesn?t  work unless someone else says it. Sometimes it doesn’t work at all.

Why are you volunteering to be a team captain?  Because I can. If I did not, we would have lost the $5000 my supporters donated over the  past two walks.

How long have you had Parkinson’s? I was diagnosed 21 years  ago, but  I probably had before then.

Do you know what caused it?  No,  but I have some ideas. I was  exposed to toxic chemicals  over the years:

  • agent orange during the build-up to the Vietnam war,
  • what ever was buried under the ground at Rocky Mountain arsenal,
  • working in office buildings that had previously been used to store chemicals
  • watching a crop duster spray something badho
  • etc

Did that make you angry? No, but it probably should have.

Do  you have any words of wisdom for new ?PARKIES?

Getting diagnosed with Parkisons  may seem like a death  sentence. You  may think: why me? It’s not fair. Stop whining and deal with it. That’s easier said than done. Here are some ideas.

  • Don’t be ashamed of it and don’t hide it. You are still you.
  • Build a support team from friends, neighbors, church members, co-workers, medical people and more.
  • Find a neurologist who specializes in movement disorders. My first one didn?t. When he told me exercise would not help, I  went shopping for movement disorder specialist and found one at Duke.
  • Consider getting a second opinion. I went to the Mayo clinic for a  week, took a bunch of tests, and had the diagnoses confirmed. While there, I saw a lot of people worse off than me.
  • Learn about the disease by reading , going to symposium, support groups, etd
  • more to come??

Honor Roll

Manifold Grandkids
John Manifold
The Medons