I am participating in Moving Day® Buffalo, benefiting the National Parkinson Foundation Western New York, on Sunday, September 10, 2017 at Coca-Cola Field.
The event will be a fun-filled, family-friendly event for all ages and abilities. We will be able to enjoy a variety of movement activities yoga, dance, Pilates, Tai Chi, boxing, stretching and much more and celebrate the importance of movement in our lives.
This past year has been good for me by a couple of important measures. Of primary import, I have met my goal of keeping out of the hospital for an entire calendar year. The doctors have a name for this condition, ?the honeymoon?. That period after diagnosis where the medicines appear to work more often than they don?t. In my case, the combination of meds and DBS (Deep Brain Stimulation) electrodes means there are times I can almost forget I have this degenerative disease and, as the Summer turns to Fall, I will inexorably be dragged into the next phase of this disease. The loss of stability, the misplaced word, the hand that won?t keep still at the restaurant.
One of the few things that allow me some level of consolation are my efforts on behalf of the local Parkinson’s support groups. I have been interviewed about this disease both by writers in the New York Times and the Buffalo News, as part of media coverage of the Ice Bikes of Buffalo Canal Fest and Mayor Byron Brown’s Proclamation of April as Parkinson’s Awareness Month.
Please consider being a part of my team or sponsoring me, and I encourage you to get your friends, family and coworkers involved. While new medicines are being developed constantly, they fall under the treatment of the symptoms and there is still no cure.
Thank you for helping me reach my fundraising goal to support the vital work of the National Parkinson Foundation Western New York.
Why Move for Moving Day?
Did you know that someone is diagnosed with Parkinson’s disease every 9 minutes in the United States? No one should have to face Parkinson’s alone. That is why the National Parkinson Foundation provides a community of support to give people the resources and help they need to live well with Parkinson’s.
Support our mission to help every person diagnosed with Parkinson’s live their best possible life now. Your gift will help us fund better research, better treatment and better lives.